#80… Morning x I am still at Kings but I think I’m going home today. Not yet though. The surgeon called me this morning but I was at the hospital. I have here for a week. I feel okay but I am very weak on my feet – very weak. Unfortunately already had 4x fallsContinue reading “Getting there… 🤔 …really?”
Tag Archives: Macmillan
🤙🤙🤙
#69… Hi…nice…hello…! There are a couple of cannabis-based medicines now licensed (UK). These include Epidyolex and Sativex (and also Nabilone – a synthetic cannabinoid). This is Sativa, a cannabis spray. I am going to give it a try. Nice 👌 Specific cannabis-based products are available on prescription as medicinal cannabis. These are only likely toContinue reading “🤙🤙🤙”
Ahhhhh…☺️ 🤭 🤗
Ohhhhh… 😵💫😵💫😵💫 …! Ahhhhh… 😵💫😵💫😵💫 …! Jx
Alright. Here we go.
#66… The trial was a really good thing. I was very happy to do it. But now it is over I have a choice: more chemo or no more chemo… 😵💫 Lots of people have chemo and I have had 3x different types myself. But the side effects can be harsh and with no guaranteeContinue reading “Alright. Here we go.”
Last call for the marathon…
#33 Just 13x hours after confirming my entry, I was leaving my house for the start line! Don’t get me wrong, I had prepped my kit bag ahead of decision making so it wasn’t as much of a scramble as you’re probably thinking. My friend Scott, who I ran the virtual marathon with in 2020,Continue reading “Last call for the marathon…”
More questions, less answers…
#32 My quarterly MRI scan was brought forward 1x week because of this unexpected seizure (arranged by the CNS – helpful and caring as ever). I was taking things very easy. I had a nasty reminder of that feeling and it’s horrible. The process is scary but I feel for those involved or standing byContinue reading “More questions, less answers…”
The M-RI-athon…
#27 I started this blog entry back in NOVEMBER 2020…! Sorry. I’ll keep it brief. November was post the virtual London Marathon…post my 40th birthday…post my October MRI scan and the resulting consultation with the neurologist. A lot has happened but I know you’re all thinking…how’s Ava?! The answer is awesome and cute and fun andContinue reading “The M-RI-athon…”
40 v 26.2…
#26 Good morning, afternoon, evening – it’s been a while, sorry. I’m happy to report my 2x month absence is because nothing has really happened! No seizures, nothing reported to the CNS team so everything seems well on that front which is good. My last MRI was in May and the next one is scheduledContinue reading “40 v 26.2…”
Ready, steady, go…
#20 It’s taken a while to get to blog #20 and I’m only just writing about summer/autumn 2019. When I read it back to myself, I sometimes forget it’s about me which makes it quite surreal. As chemotherapy cycles continued, I started to suffer with ‘metal mouth’. It’s exactly what it says on the tinContinue reading “Ready, steady, go…”
The comedown…
#17 Before setting off for Utrecht in April 2019, I looked into some new travel insurance given my new circumstances. At that time, my policy was with Churchill who, after a relatively short conversation, said that they were not willing to upgrade my insurance. “Ohhhhhhh no, no, no, no, no” they said. I did aContinue reading “The comedown…”
~ astrocytomajames ~ 