Feeling Good 👍👍👍

#47… I’ve just home after a very nice in London. I went Jo and one of my good friends Tom. It is very easy to and thinking about the will be coming soon. I am so to be so lucky see people and people who are so lovely. On Monday I will my first dayContinue reading “Feeling Good 👍👍👍”

Okay. Not good…

#45… I have been saying to my oncologist since my operation, and how the she thinks it’s going. When had the op there was a thought that before the first surgeons And there was very issue. “Thank you for taking my call just now. Hope you are both ok as can be. As promised hereContinue reading “Okay. Not good…”

The diagnosis…

#10 The MDT meeting took place 13x days after my operation. A few days later, we met L~ (another female member of my favourite CNS team) for official news of the operation, biopsy and to discuss the next steps. We met at KCL, in the Cicely Saunders institute which is a quiet sanctuary away fromContinue reading “The diagnosis…”

The aftermath…

#9 The fluorescent positive area of the tumour had been sent to the lab for diagnosis. This would involve analysis of cells by a neuropathologist, looking for particular patterns that are characteristic of different grades of tumour. The neuropathologist report would need to be published and discussed at a multi discipline team meeting before IContinue reading “The aftermath…”

Upstairs, downstairs…

#8 I went down to surgery at 1000…I came up from surgery (plus recovery) at 1700. If my math’s are correct and there are no side effects from my operation, I make that a total of 4x hours. Ha! It was a grand total of 7x hours.  During surgery, any small mistake could result inContinue reading “Upstairs, downstairs…”

The operation, FINALLY…!

#7 The initial stages of the operation were performed under general anesthetic, my hair was shaved, a reverse C shape incision made in the scalp to reveal my boney skull where a portion was cut out. At this point you still can’t see the brain as there is another layer called the dura mater under which the brain floatsContinue reading “The operation, FINALLY…!”

What a terrible support act…

#6 Did you know that if you have a seizure during open brain surgery, like an awake craniotomy, you can calm (or stop) the seizure by simply applying cold water directly on the exposed brain? No? Well you do now… Unfortunately, we hadn’t got that far when my tonic clonic seizure took place, we wereContinue reading “What a terrible support act…”

The small(er) reveal…

#4b Picking up from the last blog, a reminder that we were in the consulting room with other people besides my family and senior fellow J~. I haven’t asked any of the medical team (at time of writing) if they’re happy to be named in this blog which is why I’ve used J~ instead ofContinue reading “The small(er) reveal…”

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